So I went to my family reunion. It was lots of fun. My grandmas family was in charge of doing things. I will admit that I hate not being able to help. I can do a very good job of getting in the way. So if you feel like you need some assistance with someone getting in the way I would be glad to help with that.
It has been a lot of fun to see everyone. It is kind of odd because we all seem to be getting older. Not sure how that keeps happening but maybe it will stop. That last sentence was meant to be sarcastic.
I am not sure I like the way everyone thinks I am such an anomaly and so special. I know I am but I am not sure I like how some people make such a big deal. If you were to look on the internet and look up "locked-in-syndrome" you will mostly see persons that can do a lot less than I can. If you want to see a movie about my diagnosis "The diving bell and the butterfly." Is a good example. My mom said it made her feel claustrophobic. If you want to watch it have fun. I am getting better at accepting some complements and other praise they feel they have to throw at me. In many ways I am just a normal guy. I put my pants on one leg at a time. I just do it a lot slower than most people.
We stayed at a motel a little ways away from my reunion. There are others but they were built before ADA was the rule. If any changes have been made they were cosmetic. No structural changes, so no need for them to do anything major.
One thing that I am not very good at doing is letting other people do things I feel I should or can do myself. I will try to do something myself. If it is something I can do myself great. At times I can't do something and I have to ask for help. Then there are the times that I have been able to do something and for whatever reason I can't do it again. I look at some of the things I have done and I wonder how I was able to do it? I guess I had enough tenacity that I was able to do it. I remember that I had to cut my toenails when I was in the hospital. I asked and the people seemed to be passing the buck and doing their best to avoid the subject. Somehow I took off my shoes and socks and cut my toenails. Then I put my shoes and socks back on. How I was able to do it all I have no idea. I did it but I really don't know how. I feel that way about many things I have done. I think I must have had a real big desire to do some of the things done.
The thing is I can do a lot of things but some things are so time consuming that I really hate how long it takes me. There are some people that get tired of how long it takes me to do things and they offer to do something because they can do it faster. There are the people that don't offer help for whatever reason. I am not sure I know how to feel about either.
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